It
was an average afternoon, but I was about to receive a telephone
call that was far from typical. After four weeks of
debilitating pain that was quickly spreading throughout
my body, I had changed physicians and found one who was
willing to run tests to discover what was causing the pain.
Encouraging,
inspiring
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"The
test came back positive. It's rheumatoid arthritis,"
she told me.
"Okay,"
I said, trying to grasp the impact this simple statement
would have on my life. "On a scale of one to ten,
ten being normal, what's the best I can ever hope to feel
again?" I asked, wanting to know what lay ahead.
"If
you're really lucky," she said sadly, "maybe a
seven."
Life
was about to take an unexpected detour,
throwing me on a journey I never would have imagined.
At
the age of 24, I had a promising future. I was nearly
finished with my bachelor's degree and working for a large
non-profit organization, gaining experience that I hoped
would help me in my career as a fund-raiser and special
events planner. I was dating a man whom I adored and
hoped to someday marry. Most of all, I felt that God
had truly led me to the large city I was in, a thousand
miles away from my home and family, to serve Him. Although
His plans had not yet been revealed, I began to believe
it would somehow be in the form of ministry, as I thoroughly
enjoyed my part-time work as a youth director for a local
church. Terms like chronic illness, auto-immune disease,
and non-steroidal anti-inflammatories were not a part of
my vocabulary.
IT
ALL BEGAN ONE MORNING. . .
I awoke to a swollen wrist that was unable to bend without
excruciating pain. I assumed that it was a simple sprain
and I wrapped it and went on with my day. Although
the pain subsided, it returned within a few days and was
surprisingly in the other wrist as well. Within days
the pain went to my left elbow, then the right elbow, the
left shoulder, the right shoulder and then the hips, knees
and feet. My supervisor at work was sympathetic and
told me to do as little work as possible for the time being.
My physician insisted that it was just tendinitis.
Although I didn't have the symptoms of tendinitis, she refused
to run any tests
When
I found myself unable to go to work one morning, because
I could not rotate my wrist enough to open my bedroom door,
I knew that something needed to be done. I called and
made an appointment with a doctor of internal medicine. She
intently listened to my symptoms, ordered tests and lab
work, and called me in a matter of days with the results
I
began to read all I could get my hands on about this disabling
disease and repeatedly found phrases that described rheumatoid
arthritis as "a debilitating illness" and "a
crippling disease." I asked, "Lord, what
are you doing here? How am I supposed to do your work
and live with this illness? I thought that you had
great things in store for me, but instead it looks like
you are going to waste the gifts that you have given to
me." I called my pastor and friend, Harry, who
I knew also lived with rheumatoid arthritis. What
a joy to have a friend who could say, "God is in control,"
but who could also say, "I've been there. It's
not much fun, but I'm here if you need me.
THAT
WAS IN 1993. . .
And
I have found that, of course, God knew what He was doing
all along, as His plan has been revealed. Since my
diagnosis I have finished my degree, gaining insight into
what it's like to go to college with a disability. I
married the man I was dating, and had tears in my eyes as
he smiled at me and pledged "in sickness and in health." And
rather than working for a non-profit organization, I have
began my own. Despite the medications and physical limitations
of having a child we adopted a newborn baby boy in 2003,
Joshua Aaron.
Following
diagnosis I volunteered for professional health organizations
and was surrounded with people who said, "How do you
keep such a positive attitude?" "What keeps
you going?" I also witnessed many people who were
hurting, not just physically, but emotionally and spiritually,
and I knew that they needed to hear about Christs
unconditional love.
After
searching for a book, an organization, or a support group
that addressed chronic illness from a Christian perspective,
and finding none, I felt God calling me to His purpose for
my life, to begin a ministry for people who live with chronic
illness or pain. I cornered Joni
Eareckson Tada at a book signing and said "Is there
a ministry like yours but for people with illness, because
I need it! But I don't want to duplicate somethng that someone
else is already doing. She sweetly said, "No one else
is doing it." And in some way told me to "go for
it."
HOW
IT ALL STARTED. . .
In
1997, I began writing a newsletter, ...And He Will Give
You Rest, and people quickly responded. In 1998,
Rest
Ministries, Inc. became a non-profit 501(c)(3) organization
and began to reach out not only to individuals, but churches,
providing tools, education and resources, so that they can
more effectively meet the needs of the chronically ill in
their church and community. (http://www.restministries.org).
In 2004 we began HopeKeepers
Magazine and in 2008 Hope
Endures Radio Podcast.
Every
day is painful. Despite various medications, accompanied
by a multitude of side effects, I have never experienced
remission or even slight relief. My body seems to have
aged 50 years in the last five. Each day is a challenge.
Yet, I do not complain of this, for I have found joy beyond
anything I could have ever discovered without my illness. I
have learned an appreciation for life, an intensified joy
of family and loved ones, a compassion for those who are
hurting, and the ability to offer sincere understanding
to those who feel devastated.
WHAT
KEEPS ME GOING. . .
Each
day I am reminded that it is only through God's strength
that I am able to pull myself up out of bed, get to my computer
and reach out to others, encouraging them to keep reaching
out Jesus Christ. By answering a simple email, sorting
a bulk mail, or writing the newsletter, I have found a peace
in my pain that passes my understanding. knowing that I
am making a difference in someone's life whom feels alone
and isolated in his or her physical pain. One in three
people in the >United States live with a chronic condition,
so if it is not you, it's someone you care about.
And
I feel truly blessed to be able to use my love of writing
and encouraging others through many ways such as authoring
books, tracts, etc. which all allow more people to know
about Rest Ministries, and therefore, what God can do with
their broken bodies. >This is how God works: through each
of us reaching out to others, despite our circumstances.
The
doctors say that soon they will begin to remove some of
the bones in my feet so that I can continue to walk. Both
shoulders and both knees need the joints replaced and my
hands continue to function less each day. New medications
give some hope, but the damage that has been done will never
be able to heal. Despite the challenges, I cannot imagine
not continuing to give everything I have to this
ministry God has given me.
There
are too many people hurting who are looking for healing
in New Age remedies, such as hypnosis, "psychological
cleansings," and places other than the healing that
can be found in Jesus Christ. Healing comes in many
forms and whether one is physically healed or not, one can
find joy, peace and grace in our Lord and nothing can replace
this.
2
Corinthians 1:4 has come alive for me. "He comforts
us whenever we suffer. That is why whenever other suffer,
we are able to comfort them by using the same comfort that
we have received from God."
Over
300 HopeKeepers groups exist. We are the founders and sponsor
of National
Invisible Chronic Illness Awareness Week, exposing our
ministry to hundreds of thousands (over 25,000 from MySpace
in just a few month's time.) It's with great joy and
humbleness we are now an affiliate organizate of Joni
and Friends, her organization.
I
hope that as I continue this journey of living with a chronic
illness I will be able to reach out to others and, through
Jesus' love, help them become wounded healers, able to minister
within their pain, to others who are hurting and bruised
by life's detours. Each of us has our "thorn,"
but it is up to us what we decide to do with it to bring
God the glory.
Never
believe that I am anyone special. God can use you and your
weaknesses in the same way He was used mine. He can also
create the perfect plan to give you passion and strength
for things that you love in the midst of His plan for your
life. I know people come to my web site and think, "Oh,
she has it all. She has a husband who loves her, a child,
a ministry. She can't really be in that much pain."
The truth is that yes, I am very blessed, but yes, myself
and my family have also been attacked spiritually in many
ways and it's by the grace of God--truly--that this ministry
hangs on when I feel so overwhelmed and inadequate at it
all.
Be
open to what God has planned for your life. It may come
in giftwrap that you don't like! But it will be the perfect
gift He has hand-selected just for you!