Advocacy for Patients
with Chronic Illnesses
Get Free information, advice, and advocacy
services from attorney Jennifer C. Jaff and
others who are trained to help make sure your
rights are fulfilled.
But
You Don't Look Sick
This web site is about living life to the
fullest with any disability, invisible disease,
or chronic pain. It hopes to provide answers
to the endless questions of: "But you
don't look sick?"
Cafe
Chronique
A wonderful social network for the Chronically
Unique! This web site is rather whimsical
and "girly" making you feel "blessed"
for just a moment that you qualify since you
have a chronic illness. Lisa (RM's founder)
is a participant as the group leader of "Sick
Chick Authors and Writers." See
their shop.
Care
Pages
CarePages are free, easy-to-use Web pages,
brought to you by Revolution Health, that
help family and friends communicate when a
loved one is receiving care. CarePages help
Families create a virtual meeting place on
the web, share news and photos as often as
needed, receive emotional support during a
time of need.
Care
Place
CarePlace was founded to help people and
their caregivers connect with one another,
to share their experiences, concerns, passions,
triumphs, and difficulties, and to support
one another through trying times
Caring
Bridge
A CaringBridge site is personal, private and
available 24/7. It has free, personalized
websites for anyone facing critical illness,
going through cancer treatment or in recovery,helping
ease the burden of keeping family and friends
informed.
The
Center for Research on Preventing and Managing
Chronic Illness
They have promoted and supported research
to improve the health and well being of people
who are vulnerable to chronic disease because
of age, minority status, poverty, and/or rural
residence.
ChronicBabe
The only online chronic illness support site
just for young women! Sign up today for their
free eNewsletter: Goodie Bag and get dozens
of tips delivered straight to you every other
week. (And when you sign up, you also get
a free ebook, How
to Be a ChronicBabe: A Beginner's Toolkit.)
Chronic
Illness Network
They provide both direct patient services,
in the form of a social and support group
and chronic illness buddy program; as well
as educational workshops on chronic illness
to the community at large, including churchs,
hospitals, community groups, YMCA's, libraries,
schools, colleges, etc. Their goal is to develop
the most comprehensive network for chronic
illness patients, their families, and the
community in hopes of bringing awareness to
chronic disease and helping patients lead
fulfilling lives despite their limitations.
Chronic
Illness News by Science Daily
Chronic
Pain Connection
Learn about the symptoms, treatment, and medications
of chronic pain conditions and find support
from others with journal pages and more.
Easy
Diagnosis
Answer questions about your symptoms and get
an instant online diagnosis.
Friends'
Health Connection
This is a nonprofit organization that offers
an array of educational programs as well as
a support network that links individuals with
the same health problems on a customized basis.
They also connect caregivers to one another.
Grand
Rounds
Grand Rounds is the the weekly rotating carnival
of the best of the medical blogosphere.
HealingWell.com
Guide to Diseases, Disorders, and Chronic
Illness, resources on diseases, disorders
and chronic illness, including medical news.
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Help
My Hurt
This blog is written by a nurse who has
worked with many patients who have experienced
siignificant pain. She says, " I've seen
pain underestimated and misunderstood because
of preconceptions and judgments from those in
the healthcare system and - in all fairness
- society in general. The only way people with
chronic pain will be understood by those around
them is through education. So, this blog became
a mission to help those with pain, but also
those without."
hopekeepers
Magazine
A
quarterly publication that encourages those
with chronic illness or pain, with Christian
inspiration and helpful topics.
How
to Cope with Pain Blog Carnival
Each month the How
to Cope
with Pain Blogger (a Board Certified Psychiatrist
in practice for 15 years) puts together some
of the best articles on... well... how to cope
with pain. RM's founder, Lisa, is a regular
contributor to the carnival and also a guest
blogger each month.
The
Invisible Disabilities Advocate
Helping People Understand, IDA creates a
better understanding of living with chronic
illness and pain.
Jigsaw
Health
The home for science-based alternative medicine.
Keep
Working Girlfriend
Rosalind Joffe is a chronic
illness coach and she is an excellent resource
for all things work-related when you live with
an illness. After life with CI for over 30 years,
she's on a mission to share her best practices
for doing well at work and even has a free newsletter.
Medexplorer
A medical/health related search engine for healthcare
professionals and consumers.
Medline
Resources on Chronic Illness
National
Invisible Chronic Illness Awareness Week
Held annually in September, this week is sponsored
by Rest Ministries and is an outreach to bring
more awareness that nearly 1 in 2 people live
with chronic illness and 96% of it is invisible.
Featured telephone seminars speakers, awareness
items and more.
Patient
Advocate Foundation
This organization seeks to safeguard
patients' access to medical care, maintenance
of employment, and financial stability through
mediation with insurers, employers, and creditors.
ProHealths
ImmuneSupport.com
Home for anyone with an illness, especially
Chronic Fatigue Syndrome (CFS) and Fibromyalgia
(FM). Has news, support, and comprehensive nutritional
solutions. 5 million visitors a year and a patient
owned company.
Rest
Ministries Chronic Illness - Pain Support
The largest Christian organization that meets
the emotional and spiritual needs of those living
with chronic illness or pain.
Rest
Ministries Sunroom
A community on Ning where one can interact with
others, start your own page or group and make
new friends.
Self-Growth.com
A wealth of articles and support. Lisa, Rest
Ministries director, is a regular contributor.
Small
Comforts Foundation
A not for profit organization dedicated to funding
and administering programs which will raise
the morale and improve the quality of life for
the chronically ill. It is our mission to accomplish
this through providing the best resources and
information possible and establishing programs
which will make a difference in the daily lives
of people afflicted with chronic illness.
Wrong
Diagnosis
One of the worlds leading providers
of online medical health information. The site
is an independent, objective source of factual,
mainstream health information for both consumers
and health professionals.
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Living
Hope Coaching
Mary Clewley is a former pastor and currently
a Chronic Illness LifeCoach.
Changing
Paces
Trish Robichard asks, "Are you a person
with a disability who wants to be more or do
more than you do today? What would you do if
you could?" She says, "A Chronic Illness
Coach can help you figure that out and show
you the short-cuts to making it happen!"
Chronic
Illness Coach
Tom Robinson says, "Even though there were
times when I felt like giving up, I continued
fighting to reclaim my life, and ultimately
was successful. I now use the knowledge and
wisdom I gained from my ordeal with chronic
illness (Crohn’s disease) to give people tools
and support so they can reclaim their lives,
start dreaming about their future, and then
take steps to realize those dreams."
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CI
Coach
Rosalind Joffe says, "We're here to tell
you that living with a chronic illness and succeeding
in your career are not mutually exclusive. We've
coached hundreds of people, like you, who fear
that illness might someday hurt their career."
Creative
Life Navigation
Kim Fletcher's ability to ‘navigate the best
course for all of life’ began with herself,
as she set out to take the best of her professional
roles as physical therapist, college educator
and disability advocate... blending them into
a creative way to impact others. Kim brings
first-hand experience
to redesigning life around one’s passions and
strengths. (Christian)
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