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Lisa Copen, 39, began National Invisible Chronic Illness
Awareness Week in 2002 as she continuously witnessed hundreds
of people emotionally hurting just because they felt as
though no one “got it.” Lisa has lived with rheumatoid
arthritis and fibromyalgia for fifteen years and understands
how validating it can be to just have one friend who you
don’t have to explain everything to.
“Though there are hundreds of illnesses represented,
and large differences in symptoms and pain levels, none
of that matters more than feeling like someone understands
you. When our best friends and family members are skeptical
about our disease, at times it can be more disheartening
than the actual illness.”
 She
explains, “We plan to draw together the millions of
people who live with invisible chronic illnesses, and provide
them with a reminder that they are not alone. They will
find an oasis of hope and understanding and tools to educate
their loved ones.”
Through Invisible Illness Week’s guest bloggers, who
are even revealing their illnesses for the first time to
their colleagues, to 20 seminars that supply steps to ensure
that one is receiving the best care for their body and soul,
National Invisible Chronic Illness Awareness Week is succeeding
in meeting that goal.
Pre-register
for any conference and get 200 ways to encourage a chronically
ill friend from the book Beyond
Casseroles: 505 Ways to Encourage a Chronically Ill Friend.
(Registration is not required, but helps us plan better.)
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BLURB
FOR YOUR EZINE NEWSLETTER
Have
you heard about National Invisible Chronic Illness Awareness
Week? September 8-14, 2008 will feature 20 seminars via
Blog Talk Radio, (4 per day, M-F) plus tons of people are
helping spread the word by blogging about invisible illness
issues. Do you get tired of hearing, “But you look
so good?” or weary of the stares when you park in a
handicapped spot? This is our chance to educate the public
as well as remember we are not alone. Nearly 1 in 2 people
in the USA live with an illness and 96% of it is invisible.
So
join the cause today! They have daily guest bloggers at
www.invisibleillnessblog.com, lots or prizes, articles,
and it’s a great way to make some new friends and attend
a conference without ever leaving your home. The main web
site is: www.invisibleillness.com .
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Want More Information? Contact
Lisa Copen at lisa@invisibleillness.com
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Lisa is available for interviews via radio, internet radio,
blogs, etc. or 858-486-4685 (voice mail, we'll call you
right back!)
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"I
would never be able to attend in person due to expenses
and because I don't travel well. Plus all the walking
involved to get from one place to another would
make it difficult for me to attend. With a virtual
conference all of that is eliminated! No stress
of getting to the right room by the right time."
Carrie Crews, lives with Migraines, Chronic Daily
Headache, Fibromyalgia
